Don't underestimate them Don't treat them indifferently They are people blessed with talent They never fail to amaze us They teach us many lessons They are inspiration in its entirety. Who are they?? The visually impaired. There are people who possess sight but remain oblivious to the sufferings of others. The world revolves around them … Continue reading 13 ~ Not an end to the world ~
Month: December 2017
12 ~ Limited edition ~
Walk in to my first "official" appointment with a Neurologist. Or rather a so called one. Later I came to hear of others who also had bad experiences with this dr. Other's opinions may differ. My personal experiences taught me not to consult with a neurologist who is too young if you're having complicated symptoms. … Continue reading 12 ~ Limited edition ~
11 ~ Invisible not imaginable ~
[ AUGUST 2016 ] One night 🌉 *Me trying to sleep thinking* Ugh! These legs are gone crazy.. they are so edgy & only when I move them the edginess stops. Once I stop moving, It's this terrible restless feeling that takes over & keeps me awake. No matter how exhausted I am, sleep is … Continue reading 11 ~ Invisible not imaginable ~
10 ~ The healthiest ingredient ~
Posts are usually published according to the order my diseases progressed.. However, to digress on certain parts I will fast forward ahead of time & return to the previous topic.. Regarding this particular disease, my story was briefly featured on Rare Diseases SA's blog in August 2017. This is the link for those who may … Continue reading 10 ~ The healthiest ingredient ~
9 ~ An epitome of “resting in peace” ~
[ 15 June 2016 - 9th Ramadhawn 1437 ] Indeed to our Lord do we belong & unto him is our final return "She's gone?" "Is this for real?" "How? What happened?" I hear mom utter in a tone of disbelief Immediately it struck & I zoned out as the sad news riveted my entire … Continue reading 9 ~ An epitome of “resting in peace” ~
8 ~ The call @ 4:15 am ~
(Abdullah's operation is postponed to early January next year.. His surgeon is a wonderful Dr of a kind. In today's world where it's very hard to find good drs that deal with rare cases, we need to give due recognition to those who excell in their field & take proper care of patients. Dr Grieve … Continue reading 8 ~ The call @ 4:15 am ~
7 ~ Crawling to the bathroom ~
PAIN. Physical pain Pain types vary Pain fluctuates Pain changes who we are Pain changes our outlook Pain makes us compassionate, considerate & kinder in a different manner (not that we weren't before lol) Pain is part of our "new normal" Chronic pain revolves around "the normal for us" & "flares" When pain becomes a … Continue reading 7 ~ Crawling to the bathroom ~
6 ~ The greatest gift ~
(Featured originally on Rare Diseases SA Blog) • November is bladder health awareness month • A bit later than that but here goes a quick peak... Rhaadiya Munchi Seedat As every woman waits to get over the 9 months of pregnancy, labour & cradle a new bundle of joy within her arms... 《 31 JULY … Continue reading 6 ~ The greatest gift ~