In honor of Pulmonary Hypertension awareness month, we've been requested to share our memories of Humayra Bodhania πππ π ππ β―πΈπΎπΆπ πΆπββ―π π π½πππΎπβ πΆπ·β΄πβ― π»πβ―β―ππ πΎπ π½β―πΆπβ―π ββ―π πβ―βπΆπΈπ ππΎπβ―π β΄π πΆππΉ πΎπ πβ―πβ―π π»β΄πββ΄ππβ―π Humayra's words reflect the depths of the soul and intelligence from which it originated. Up until today - 3 years later, … Continue reading 111 ~ A striking rose ~
Month: November 2018
110 ~ A heavenly crown ~
The poem below was sent in by a caregiver in one of our support groups sourced from another website. Thought it appropriate to share now due to November being a month attributed towards highlighting the unconditional, selfless sacrifices of our caregivers daily.. 24/7 Please feel free to share / dedicate it to whomsoever you wish. … Continue reading 110 ~ A heavenly crown ~
109 ~ Volumes of untold fortitude – Part 2 ~
A major reconstructive surgery related to bladder exstrophy. Not simple as the brief explanation shared here... Hence, the surgery being scheduled for a time the surgeon is free from other cases to concentrate fully on Abdullah. It was initially set for January 2017 but emergency cases came in so Abdullah was postponed to a later … Continue reading 109 ~ Volumes of untold fortitude – Part 2 ~
108 ~ Volumes of untold fortitude – Part 1 ~
And I think many people don't realise what a bounty it is to have a normally functioning bladder. Do we appreciate the entire "normal" method involved of being able to urinate / deficate for that matter...? Before I digress onto anything else, knowing the basics of the urinary system can help you understand better Urinary … Continue reading 108 ~ Volumes of untold fortitude – Part 1 ~
107 ~ STTW hits one year ~
What prompted you to begin writing? Turn the pages back to 17 months ago 24/07/2017 I recieved the following email from a past Dr: Hi Khadeeja I trust you are keeping well. This email of yours somehow slipped under the radar. I donβt know how i missed it. I am glad you are undergoing all … Continue reading 107 ~ STTW hits one year ~
106 ~ In the prime of her life ~
And yet, a multitude of reasons to escalate our voices for rare & rarely known disease recognition. In relation to the previous post, I thought it necessary to share the story of a princess who ruled & conquered her kingdom at a tender age, in the prime of her life. (As mentioned below about Jenna, … Continue reading 106 ~ In the prime of her life ~
105 ~ The Right Heart ~
November is a multiple disease awareness month but today we focus on Pulmonary Arterial Hypertension PAH is a type of high blood pressure that affects the arteries in the lungs and the right side of the heart. When these arteries become narrowed, blocked or destroyed, it becomes harder for blood to flow through the lungs, … Continue reading 105 ~ The Right Heart ~