124 ~ Why the stripes? Part 4/4 ~

It’s here 🤩🎉📢

In honor of all fighters and their families

The zebra is the official symbol of rare diseases in the United States and is noted for its black and white stripes, which are central to its uniqueness.

Everyone has his/her own stripes, those characteristics that make each individual distinct.

While each of the more than 7,000 rare diseases are unique, there are many commonalities that unite the rare disease community.

In the spirit of raising awareness regarding rare disease issues and celebrating Rare Disease Day, specific ways are promoted for individuals, organizations and groups to show their stripes

– NORD

National Organization for Rare Disorders

Show your CARE FOR RARE by wearing black and white stripes, a denim ribbon from an ambassador in your area / any of the colors such as green, blue, pink, navy and white in the above picture.

Please send us pics of your ribbons and or colors as well 💙

Thank you!!!

What we’re often told & then dismissed 👇


Many people are of a notion; that a once functional life terminates / reaches a dead end when a person becomes chronically ill, which is contrary to reality.

At certain junctures – “living as we do” – whilst being dependent on others for assistance, is tapped on pause.

However it always resumes. We are not total invalids. Having said this; keep in mind, not everyones conditions is alike even if it be of the same name.

Such is the case with Dysautonomia, be it the normal or rare types.. We are similar & relate but also differ depending on cause & nature of each case.

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