What are some of the major problems experienced by people who have rare diseases & why is awareness so important? ⚠️ Difficulty in obtaining an accurate diagnosis ⚠️ Limited treatment options ⚠️ Little or no research being done on the disease ⚠️ Difficulty finding physicians or treatment centers with experience in treating a particular rare … Continue reading 215 ~ Reframe rare – 3/7 ~

Instead of writing an entirely new chapter, i decided to share with you a brilliant article written by Megan Toni Hunter. This article encapsulates all that needs to be reiterated and emphasized upon in terms of joining the Rare Disease Day movement. Megan has layed out the facts loud and clear 👏 Rare Disease Day … Continue reading 214 ~ Reframe rare – 2/7 ~

Rare Disease Day is 4 days away! With 2020, being a leap year, we are wanting to make our #RareDiseaseDay celebrations extra special, and we need your support to do it! There are over 7,000 rare diseases affecting over 350 million people worldwide. Medical expertise and knowledge on rare diseases is scarce and scattered across … Continue reading 213 ~ Reframe rare – 1/7 ~