Six months away from reaching six years (of being in the chronic club) - the average period taken for Dysautonomia to be diagnosed. I’m fortunate to be diagnosed at approximately 2 years into this estimated time frame and express profuse gratitude for being priveleged with lifestyle management resources. Being the best ambassador for yourself as … Continue reading 256 ~ STTW hits 3 years – 2/2 ~

17/11/2020 Three years, countless hours, and my entire soul woven into 256 chapters. Unfortunately, posts have been rather inconsistent this year and I haven't been able to write frequently due to my health being on a continous roller-coaster. From random in between days of doing work I am passionate about, to another day with unanticipated … Continue reading 255 ~ STTW hits 3 years – 1/2 ~

Coincidentally in time for NERVEmber awareness month, I happened to recall the very first poem composed in my journal during the initial months of being sick; when a young girl in her teens recently confided to me about a pre-existing condition she had which necessitated surgery. An observation has been made in the case of … Continue reading 254 ~ None of it was a lie ~

Not long after, Dr U final word coincides with my incertitude… "I'm at Gatesville medical center and to get entry or admitted into Groote Schuur you require coordination between professionals from both sides. They won't accept you in as a patient if you don't have an official letter with a signature to prove you were … Continue reading 253 ~ Light on the horizon – Part 6 ~