Time inched closer to long awaited moments and few days prior to the flight my healthcare provider done an overall assessment to affirm the final go-ahead... She said as a benchmark, ideally a one hour flight is perfectly fine and going up to 3 hours is okay. Beyond 3 hours is not an option. It's … Continue reading 262 ~ Light on the horizon – Part 11 ~

Whether it be for a vacation, occasion, reunion, spiritual retreat, or medical care, packing is a fun filled task that can also be a little nerve-wracking and with Gastroparesis the food aspect might become stressful. I guess it depends on the place you're going; whether there are genuinely approved halaal eating outlets and also the … Continue reading 261 ~ Light on the horizon – Part 10 ~

2nd December 2019 My eyes fluttered open to the morning sun streaming through the blinds. I sat up slowly to stabilize the blood in my head not suspecting any exciting events to arise let alone having made plans, when my family walked into the room hurriedly to discuss some work that required a trip to … Continue reading 260 ~ Light on the horizon – Part 9 ~

Three months later a dearly loved grand uncle arrived at O.R Tambo International Airport in Johannesburg not long after (his wife) our grand aunt passed on from cancer within a short span of time اللهم اغفر لها و ارحمها و سكنها فى اعلى درجة الجنة In order to recieve and welcome him I accompanied dad … Continue reading 259 ~ Light on the horizon – Part 8 ~

The remaining course of 2018 has already been documented on the blog from chapters 51 - 119 so I will not elucidate or go into depth again. A year that passed by rather dramatically with ongoing episodes of respiratory struggles, cyanosis, transient stroke-like attacks until December 2018 While randomly chatting to a family member, mum … Continue reading 258 ~ Light on the horizon – Part 7 ~

05/11/2020 "Hi Kay. Hope you are keeping well. I see that you work at Rare Diseases South Africa and you are the Dysautonomia ambassador. I have some ideas brewing to raise awareness about dysautonomia amongst South African doctors and maybe the medical aids but I would like to touch base with you and get a … Continue reading 257 ~ New developments underway ~