Welcome to an ongoing series of dramatically palpable scenes
Where I bring the reality of invisible illness onto your screens
Not once in my existence of 18 years had the thought occurred
Nor did we hear any mention of this life-changing word
Where would someone have imagined or foreseen
A turnover of my destiny at the age of nineteen
The world as I viewed it was never the same
After the Dr uttered a tongue-tying name
DYS-AUTO-NOMIA
Sounds like gibberish??
And somewhat freakish?
Kindly follow the future posts to gain a glimpse into this mysterious realm…
Wherein each day the story of a failing bodily system turns and twists
Here I am, defying an insane level of medical ignorance that exists
Until the endmost we have no option but to fight for awareness
Because most professionals look at us dumbfounded and clueless
Dysautonomia is rarely known and invisible
It is a condition that’s real and undeniable
The manner in which it manifests with each patient
Uniquely classifies it as Atypical & different!
Visualize a tree;
The roots being an etiology – underlying factor
The trunk stemming as dysautonomia
The branches following as synchronized conditions
And leaves subdivided as a plethora of (progressive) symptoms.
As a subsequent result of Autonomic nerve damage, I have been affected with the following collection of diagnoses:
1) Small Fiber Sensory Polyneuropathy ✔️
2) Restless Leg Syndrome ✔️
3) Gastroparesis ✔️
4) Mitral Valve Prolapse with mild regurgitation (Barlow’s syndrome) ✔️
5) Coronary Artery Spasms – Prinzmetal’s Angina ✔️
6) Tachycardia – varied ✔️
7) Cardiac Failure ❓
8) Long QT Syndrome identified on an ECG tracing
9) Respiratory Distress Syndrome ✔️
Survived cyanosis & a partial heart attack (lateral infarction)
10) Postural Orthostatic Tachycardia Syndrome ✔️
《 DIAGNOSES UPDATES 》
11) Pulmonary Edema ✔️
12) Right Ventricular Strain (Enlarged right heart) ✔️
13) Suspected secondary Pulmonary Arterial Hypertension❓
14) Bronchospasm ✔️
15) Incomplete right bundle branch block ✔️
16) Partial Anomalous Pulmonary Venous return / drainage – shown on a cardiac stress treadmill test
17) Mild scoliosis ✔️
Despite losing the version of my former self through the strife of this painful and simultaneously beautiful thing called life, I realized; our existence alone holds manifold purpose, irrespective of circumstances.
Often, I thought it was the end of my world
But as the clock ticked & life upsurged
I learnt to accept plans not meant to be
And welcome the enigma of a rare decree
In due course, unexpected gifts were favored
Once my heart espied subtle messages transmitted
Initially I didn’t perceive, such a commencement
Would lead me towards invoked betterment
After all
I am a student in a lengthy but temporary examination room
Being tested for the graduation; to approach quite soon
After all
I am similar to the clouds in the sky
A mere traveler simply passing by
After all,
The world and its adornments hold no value
Except resemblance to the wing of a mosquito
So prepare well and wisely oh traveler
For the day you reunite with your creator
Swimming Through The Waves 