27/07/2021 Dr Aarif calls early morning to set an approximate time for the afternoon saying he wishes to provide assistance to the best of his capability… At 2:30 PM I am introduced to a hospitable and skilled nurse by the name of Janet or sister Janet as nurses are usually addressed. Dr Aarif: Sister Janet…
Category: Dysautonomia
288 ~ A replacement arrives ~
26/07/2021 Gusts of nippy wind blow sand adrift into the sunlit sky and I sit in limbo mode under its rays speculating on the five day overturn. How did Salmaans serious display of concern twist into a total heedless approach My befuddled brain fraught with desolation and disappointment scrambles for closure, yet a second voice…
280 ~ Life through my lens ~
(Written over approximately two months – A composition of reflections from sunset walks and moonlight thoughts) I look around at the world, I see breathtaking beauty and intense heartache I hear the shuddery echoes of ambulance sirens rushing to and fro since daybreak I watch the clouds floating away and see tracks of death as…
279 ~ Miracles from struggles ~
With love A little letter penned to my dear sister who’s family feels let down and abandoned I share your pain knowing how the disregard of treatment makes one disheartened From my soul speaking to yours: It is natural to feel lonely, though you aren’t really alone Allah is with you through your fears, through…
277 ~ Ease & expertise ~
Looking back in retrospect over the sequence of events swept over the past five years, one can marvel at the incredible and miraculous change of situations beginning via a close family friend who passed on with covid but in turn connected me to prof (as related chapter 264) Like I have repeatedly mentioned; in the past…
276 ~ Patience & prayer ~
Six months ago in December 2020 @fighting.sickness.with.fitness a fellow patient with Dysautonomia who lives in US posted the questionnaire above and I asked the one attached out of curiosity to be enlightened regarding the infusions that are included as her treatment plan. I vividly recall reading through various replies and while being sincerely happy for…
275 ~ Six year musings ~
Authors note: Assalaamu alaikum to all my respected and loyal readers: I don’t always provide an insight regarding the background of every chapter. However, alike many others this one particularly involved uncounted hours of effort to unclog a stagnant brain and make the vessels of ink flow after going off my general baseline from chronically…
274 ~ A key discovery ~
18/04/2021 Every year on the aforementioned date the calender halts me in my tracks and I rewound time back to my 19 year old self who was once blissfully oblivious to the rare realm into which she would be hurled… Would she have known that perhaps this ravaging illness was a subtle answer to few…
273 ~ Logo legacy ~
From your three ambassadors here @dys_support_sa, we were thrilled to announce and mark the 30/03/2021 As a significant day in taking our Dysautonomia Support structures forward and being officially recognized by one special emblem which made its way from behind the scenes to the front of your screens after the dearest and kindest Kara literally…
272 ~ Undreamt assistance ~
My eyes welled with tears as I gazed wondrously in a dreamlike manner at the life saving power-packed infusion aside my bed. It had been the first time after five long onerous years where a doctor was proactive and recognized the need to prevent another bout of hypovolemic shock when I developed a chest infection…
