Authors note: Assalaamu alaikum to all my respected and loyal readers: I don’t always provide an insight regarding the background of every chapter. However, alike many others this one particularly involved uncounted hours of effort to unclog a stagnant brain and make the vessels of ink flow after going from chronically ill to acutely ill….

18/04/2021 Every year on the aforementioned date the calender halts me in my tracks and I rewound time back to my 19 year old self who was once blissfully oblivious to the rare realm into which she would be hurled… Would she have known that perhaps this ravaging illness was a subtle answer to few…

From your three ambassadors here @dys_support_sa, we were thrilled to announce and mark the 30/03/2021 As a significant day in taking our Dysautonomia Support structures forward and being officially recognized by one special emblem which made its way from behind the scenes to the front of your screens after the dearest and kindest Kara literally…

My eyes welled with tears as I gazed wondrously in a dreamlike manner at the life saving power-packed infusion aside my bed. It had been the first time after five long onerous years where a doctor was proactive and recognized the need to prevent another bout of hypovolemic shock when I developed a chest infection…

The worst of the disaster had now elapsed but one important question hung in midair: How did the entire series of events start out in the first place and then lead to hypovolemic shock? At first it was like sitting in front of a jumbled puzzle trying to place each symptom according to where it…

08/02/2021 Before the crack of dawn my eyes opened effortlessly peering around the darkness for a sip of cold water to moisten my parched mouth and loosen my tongue which had dried up and gotten stuck to the palette. Mouth dryness in particular is a sign of low blood sugar and it doesn’t necessarily indicate…

Clear and tense the words resound “No! Her pulse cannot be found” A panic-stricken moment of silence pierced through the air followed by a flurry of activity between the pair of paramedics who spun into rapid action exchanging terms family members couldn’t grasp. They injected a bolus of medications directly into the tube attachment and…

07/02/2021 Morning rays filtered through the window and my eyes budged a little enough to see a caregiver come in for observation. The sweating redoubled in comparison to the past two days and I craved a sip of cold ice tea to moisten my parched throat but the same unrelenting nausea hadn’t diminished. Nausea that…

(Note: From here onwards I do not recall everything myself. Many parts in between remain blurred and others were related later by the selfless souls attending to me so the narrative is a bit sketchy) 06/02/2021 Fluttering my eyelids that burned and simultaneously felt like two bags of cement – heavy to hold on the…

05/02/2021 The days flew by, weeks turned into a month, until late the first Friday evening of February when a drastic overturn made way into my written documentary.. While chatting briefly in short pieces to a close sister with whom I hadn’t spoken for a long time. I’m sharing these specific honest feelings she expressed…