239 ~ Transformative tips – Part 10 ~

In part 9 I forgot to add one old and two recently discovered tips for Gastroparesis One: In terms of abdominal pain or intestinal cramps, I remembered the Pegasus blue box emergency kit which has an antispasmodic complexes. Honestly! It’s been a total lifesaver because when this pain rockets, it claws you down to the…

234 ~ Unveiling the invisibility – 1/2 ~

The poem below was initially composed after a Small Fiber Sensory Polyneuropathy flare-up during Ramadhaan. Part 1 of these 2 chapters flowed more with the aim of trying to paint a detailed visual of the invisible because it’s difficult for an onlooker or able-bodied people to comprehend the implication of flare-ups. Hence the title. Part 2…

192 ~ Member feature ~

Dysautonomia South Africa takes pleasure in introducing you to one of its vibrant & powerful voices Ashleigh Paterson A young, courageous lady, & former horse riding instructor, who has a number of ailments / chronic conditions such as Dysautonomia along with a large number of other comorbid, complex, conditions. As you can gauge by now,…

183 ~ Turn The Town Turquoise ~

Just because you can’t see Dys (dis) Doesn’t mean it doesn’t exist! Incase you haven’t seen them already. I had to share these breathtaking images posted by Dysautonomia International when they hosted an awareness campaign at Niagara Falls, Ontario Canada. The falls were lit up turquoise in recognition & honor of Dysautonomia awareness month 😍😍😍😍😍😍…

175 ~ A world of difference ~

On the 25th of September 2019 I express tribute to a knowledgeable and skilful pharmacist Who has played a significant role for a duration of 3 years, and always still willing to assist He’s belief and understanding of my condition to be 100% real Provides a huge source of comfort, when others are skeptical It…

169 ~ A beautiful lifestyle ~

We have been specially selected, to sail as a part of the best ummah (nations) To ensure our ships do not capsize, follow the sublime sunnah (prophetic tradition) A way of life to be crowned with success and entry into jannah (paradise) Science is still trying to catch up with sunnah… Always fascinating to note…

168 ~ A rollercoaster ride ~

Just a few points to take note: 🍃 There are plenty of support groups and other informative networks on different social media platforms.. So if you’re struggling or know someone else battling with similar symptoms but is undiagnosed.. Please feel free to connect in confidentiality. 🍃 On Facebook there’s a private group titled: Healing Gastroparesis…

167 ~ Underestimated grit – Part 2/2 ~

You probably didn’t know it existed.. You might have heard of it, but struggled to pronounce the term let alone figure out how to live with the condition.. You did not understand the significance of spreading awareness and the ripple effect it creates in generate a transformation.. Neither did I, until 4 years ago when…

165 ~ Underestimated grit – Part 1/2 ~

(I must admit that sometimes I honestly feel as if I sound like a stale or broken tape recorder repeating the same misunderstood theories again and again. Sometimes being an advocate becomes utterly exhausting so I unplug for a while. Sometimes in that state of exhaustion you feel like your voice is falling on deaf…

158 ~ Shattered dreams – Part 5 ~

Holding 5-6 pages of the ECG results, doc begins by saying: “Alright look! She’s seen lots of Dr’s, done lots of tests, but for me, I’m worried looking at this ecg, there are a few things we have to exclude. The ECG changes suggest she might have a hole in the back of her heart…