192 ~ Member feature ~

Dysautonomia South Africa takes pleasure in introducing you to one of its vibrant & powerful voices Ashleigh Paterson A young, courageous lady, & former horse riding instructor, who has a number of ailments / chronic conditions such as Dysautonomia along with a large number of other comorbid, complex, conditions. As you can gauge by now,…

183 ~ Turn The Town Turquoise ~

Just because you can’t see Dys (dis) Doesn’t mean it doesn’t exist! Incase you haven’t seen them already. I had to share these breathtaking images posted by Dysautonomia International when they hosted an awareness campaign at Niagara Falls, Ontario Canada. The falls were lit up turquoise in recognition & honor of Dysautonomia awareness month 😍😍😍😍😍😍…

175 ~ A world of difference ~

On the 25th of September 2019 I express tribute to a knowledgeable and skilful pharmacist Who has played a significant role for a duration of 3 years, and always still willing to assist He’s belief and understanding of my condition to be 100% real Provides a huge source of comfort, when others are skeptical It…

166 ~ Find wonders in life’s mysteries ~

A break in sequence. This post came about totally unplanned. I was working on part 2 of underestimated grit, but last night I got caught into an unfamiliar cardiopulmonary episode which was preceded by a forewarning undertow. Before I give you a glimpse into recent happenings & the undertow being referred to in this post,…

160 ~ Shattered dreams – Part 6 ~

11/06/2019 Cardiac catheterization day 5:45 am – Set & ready to leave 🚗 Alike early hospital appointment days, the day beforehand I ensure my Go-to bag is packed with all its necessities. Clothes etc are taken out to save time in the morning. Advanced preparations make it a hassle free morning. Enroute to hospital I…

158 ~ Shattered dreams – Part 5 ~

Holding 5-6 pages of the ECG results, doc begins by saying: “Alright look! She’s seen lots of Dr’s, done lots of tests, but for me, I’m worried looking at this ecg, there are a few things we have to exclude. The ECG changes suggest she might have a hole in the back of her heart…

156 ~ Shattered dreams – Part 3 ~

(Names in this series have been changed) 4th June 2019 While seated in the waiting room a friend sent the following pictureAll messages, quotes or videos sent during this period truly meant a lot. Your efforts are not gone by unrewarded. I clung onto each one sent. They fortified hope and strength while my mind…

155 ~ Shattered dreams – Part 2 ~

6th May 2019 I jumped up with a flurry of nervousness and excitement as I tapped open the following message which read: “I managed to get an appointment for you with Dr so & so… On the 4th of June at 2:30. Hope that’s okay” 4th of June…. 💭 Mmmm, that’s just under a months…

154 ~ A common question ~

As promised in the previous chapter, here is an article that was shared in one of our groups to enlighten ourselves as patients, as well as the general public, regarding the dilemma of us flying… Perhaps it’s better to stick to swimming lol 😂 All your main questions answered in this great article! I know…