124 ~ Why the stripes? Part 4/4 ~

It’s here 🤩🎉📢 In honor of all fighters and their families The zebra is the official symbol of rare diseases in the United States and is noted for its black and white stripes, which are central to its uniqueness. Everyone has his/her own stripes, those characteristics that make each individual distinct. While each of the…

123 ~ Why the hype? Part 3/4 ~

An entire compilation of facts to highlight why we’ve been making such a hype about the importance for the annual rare disease day events. For those who haven’t yet read the previous 2 chapters, here are the links https://kayborninmay.wordpress.com/2019/02/13/120-why-the-hype-1-2/ https://kayborninmay.wordpress.com/2019/02/13/121-why-the-hype-part-2-2/ And a previous chapter written in contribution towards rare disease day 2018 https://kayborninmay.wordpress.com/2018/02/28/37-the-day-has-arrived/ Kindly read…

121 ~ Why the hype? Part 2/4 ~

How to join the movement in SA? 1) Denim walk event in gauteng 👇 Kindly click on the link to purchase a ticket for the event http://www.rarediseases.co.za/shop All funds collected, are strictly directed towards improvement of health policies & patient care management. Your donations will go a long way & provide assistance to those affected…

37 ~ The day has arrived! ~

If a lack of awareness originates from the medical fraternity itself, how do we expect the general public to be acquainted with the effects of rare diseases? Unfortunately, a sad reality is that a major part of the system has failed us. This I state not only from my own experiences but a Dr who…