Just because you can't see Dys (dis) Doesn't mean it doesn't exist! Incase you haven't seen them already. I had to share these breathtaking images posted by Dysautonomia International when they hosted an awareness campaign at Niagara Falls, Ontario Canada. The falls were lit up turquoise in recognition & honor of Dysautonomia awareness month 😍😍😍😍😍😍 … Continue reading 183 ~ Turn The Town Turquoise ~
Category: Small Fiber Sensory Polyneuropathy
175 ~ A world of difference ~
On the 25th of September 2019 I express tribute to a knowledgeable and skilful pharmacist Who has played a significant role for a duration of 3 years, and always still willing to assist He's belief and understanding of my condition to be 100% real Provides a huge source of comfort, when others are skeptical It … Continue reading 175 ~ A world of difference ~
158 ~ Shattered dreams – Part 5 ~
Holding 5-6 pages of the ECG results, doc begins by saying: "Alright look! She's seen lots of Dr's, done lots of tests, but for me, I'm worried looking at this ecg, there are a few things we have to exclude. The ECG changes suggest she might have a hole in the back of her heart … Continue reading 158 ~ Shattered dreams – Part 5 ~
152 ~ Down the lane of reminiscence ~
(Two years ago... - Written on the 28/05/2019) يا رب (Oh lord) None but you fully knew And pulled me through Only you fully knew the extreme dread of being rushed in desperation to an unknown hospital for urgent help. Pungent surgical smells that caused the little contents in your abdomen to rise with vengeance. … Continue reading 152 ~ Down the lane of reminiscence ~
151 ~ Nourish – Flourish – Accomplish ~
After working on the process of self worth, we step onto the definition of: "Take care" A phrase often uttered out of goodwill and with care when concluding a conversation. A friend once visited and when leaving she said it in such a meaningful style. After she walked out the thought struck 🗯️ Am I … Continue reading 151 ~ Nourish – Flourish – Accomplish ~
150 ~ One of a kind design ~
Chronic illness often or in most cases, dismantles a person's sense of self esteem or self worth in various ways due to many reasons: 🔺Being unable to keep up with the rapid "pace" of an able bodied society. Feelings of incompetence. 🔺Constantly being told "nothing is wrong" or you're a "hypchondriac". Incorrect misconceptions and biased … Continue reading 150 ~ One of a kind design ~
149 ~ Four years in the fight ~
[18/04/2019] 11:10 PM And see....you've "arrived alive" Came the message from a dear sister 💖💙 At that particular point, I had no words. Hence, no long post. A time for silence & reflection. Taking into account how far I've come, as I entered my fourth year of Swimming Through The Waves. Three years ago! Who … Continue reading 149 ~ Four years in the fight ~
148 ~ The ink of metaphorical blood ~
"How do you think out the words ...?" Is an extract from a message I recieved from an esteemed father-like-uncle 11 weeks ago. Response: They're inscribed with: ~ The ink of metaphorical blood ~ Words have a gigantic power to uplift and revive the life force within people. In view of the fact that, when … Continue reading 148 ~ The ink of metaphorical blood ~
143 ~ A life changing impact ~
https://kayborninmay.wordpress.com/2018/04/08/44-a-startling-mesmerizing-surprise/ https://kayborninmay.wordpress.com/2018/04/11/45-from-lemons-to-lemonade/ Dearest Kara, DAF & PW team members: On a memorable day one year ago, I have not forgotten The incredible words of kindness your team had written At 11:50 pm - The fifth of April twenty eighteen I recall staring spellbound at the cellphone screen An write-up composed with extraordinary thoughtfulness My soul … Continue reading 143 ~ A life changing impact ~
142 ~ Balance and pace ~
I've alluded to the topic of "living beyond" in many chapters before However, due to enqueries, it is necessary to elaborate a little more Those who know me already know my interests and the about routine I created.. According to my condition ths routine changes from time to time. If you've read the Magical Revival … Continue reading 142 ~ Balance and pace ~
Swimming Through The Waves 