264 ~ Newfound hope ~

Assalaamu alaikum / Hi respected readers. Apologies for my long absence on the blog (as usual) due to health delays. A lot has happened in the past two weeks so in order to enlighten you properly, Light On The Horizon will be paused until possible to resume. For now the most recent and important events…

263 ~ Light on the horizon – Part 12 ~

[01/23, 09:16] My phone beeps with a message from our host: Salaam …So excited❤ How has my heart longed to meet a family I hold so dear After five years these long awaited moments are now here Only a few hours remain before we reunite With unexplainable joy and squeals of delight TRAVEL JOURNAL Port…

262 ~ Light on the horizon – Part 11 ~

Time inched closer to long awaited moments and few days prior to the flight my healthcare provider done an overall assessment to affirm the final go-ahead… She said as a benchmark, ideally a one hour flight is perfectly fine and going up to 3 hours is okay. Beyond 3 hours is not an option. It’s…

261 ~ Light on the horizon – Part 10 ~

Whether it be for a vacation, occasion, reunion, spiritual retreat, or medical care, packing is a fun filled task that can also be a little nerve-wracking and with Gastroparesis the food aspect might become stressful. I guess it depends on the place you’re going; whether there are genuinely approved halaal eating outlets and also the…

260 ~ Light on the horizon – Part 9 ~

2nd December 2019 My eyes fluttered open to the morning sun streaming through the blinds. I sat up slowly to stabilize the blood in my head not suspecting any exciting events to arise let alone having made plans, when my family walked into the room hurriedly to discuss some work that required a trip to…

259 ~ Light on the horizon – Part 8 ~

Three months later a dearly loved grand uncle arrived at O.R Tambo International Airport in Johannesburg not long after (his wife) our grand aunt passed on from cancer within a short span of time اللهم اغفر لها و ارحمها و سكنها فى اعلى درجة الجنة In order to recieve and welcome him I accompanied dad…

258 ~ Light on the horizon – Part 7 ~

The remaining course of 2018 has already been documented on the blog from chapters 51 – 119 so I will not elucidate or go into depth again. A year that passed by rather dramatically with ongoing episodes of respiratory struggles, cyanosis, transient stroke-like attacks until December 2018 While randomly chatting to a family member, mum…

257 ~ New developments underway ~

05/11/2020 “Hi Kay. Hope you are keeping well. I see that you work at Rare Diseases South Africa and you are the Dysautonomia ambassador. I have some ideas brewing to raise awareness about dysautonomia amongst South African doctors and maybe the medical aids but I would like to touch base with you and get a…

256 ~ STTW hits 3 years – 2/2 ~

Six months away from reaching six years (of being in the chronic club) – the average period taken for Dysautonomia to be diagnosed. I’m fortunate to be diagnosed at approximately 2 years into this estimated time frame and express profuse gratitude for being priveleged with lifestyle management resources. Being the best ambassador for yourself as…

255 ~ STTW hits 3 years – 1/2 ~

17/11/2020 Three years, countless hours, and my entire soul woven into 256 chapters. Unfortunately, posts have been rather inconsistent this year and I haven’t been able to write frequently due to my health being on a continous roller-coaster. From random in between days of doing work I am passionate about, to another day with unanticipated…