255 ~ STTW hits 3 years – 1/2 ~

17/11/2020 Three years, countless hours, and my entire soul woven into 256 chapters. Unfortunately, posts have been rather inconsistent this year and I haven’t been able to write frequently due to my health being on a continous roller-coaster. From random in between days of doing work I am passionate about, to another day with unanticipated…

254 ~ None of it was a lie ~

Coincidentally in time for NERVEmber awareness month, I happened to recall the very first poem composed in my journal during the initial months of being sick; when a young girl in her teens recently confided to me about a pre-existing condition she had which necessitated surgery. An observation has been made in the case of…

253 ~ Light on the horizon – Part 6 ~

Not long after, Dr U final word coincides with my incertitude… “I’m at Gatesville medical center and to get entry or admitted into Groote Schuur you require coordination between professionals from both sides. They won’t accept you in as a patient if you don’t have an official letter with a signature to prove you were…

252 ~ Light on the horizon – Part 5 ~

This flight to Cape Town, although necessitated by the senior pulmonologist, is more of a quandary than appears to be… Since we’re dealing with a multimorbidity dysfunctional, unstable autonomic nervous system, as well as one identified lung disease followed by another / other unknown ones. In order for you to gain a comprehendible understanding, let’s…

250 ~ Light on the horizon – Part 3 ~

The pulmonologist recieves us pleasantly and jots down a basic background of my history. But then the following is mentioned: 🔹 Dysautonomia does not affect the lungs – (myth) 🔹Pulmonary function tests prove there IS airway obstruction. He does not know why & was not too fazed by the impediment. To me the reason of…

251 ~ Light on the horizon – Part 4 ~

Right now there is one special card I want to dig out and read Because the message conveyed thereon is precisely what I need Gifted 6 months ago after my discharge from hospital along with a printed T-shirt: “beauty is found everywhere” and the note below: Reminders that may appear little but remain precious and…

249 ~ Light on the horizon – Part 2 ~

16 January 2018 The call to my neuro is scheduled earlier that day. Bated breaths as his phone rings and the knot in my gut tightens with a silent Alhamdulillah once he answers and listens attentively to the latest developments. Dr U: “Was he also suggestive of PH?” At the same time you cannot fly…

248 ~ Light on the horizon – Part 1 ~

Flight talk became a foregone topic in the distance until 14 months subsequent to a debated emergency declaration. Life’s wildest journeys unfolded… Modified version of the original publication on JANUARY 15 2018 (Unnamed) An experienced senior pulmonologist: “I have retired recently, but can help you with an honest opinion. I suspect Primary Pulmonary Hypertension (PPH) or another…

247 ~ Light on the horizon – Prologue ~

NOVEMBER 11 2016 Seated aboard Mango airlines, eagerly awaiting take-off. I was longing to breathe in salty oceanic air and feel its cooling breeze whip against my face. This body needed to reinvigorate after 16 eventful months and drastic life turnovers. After two delays due to a faulty part and rainy weather, engines are finally…

246 ~ Goodness upon goodness ~

A long overdue tribute to certain senior scholars, family members, parents friends, my own, and several others who go all out to support us in each of their respective ways. I sat with the strayed ends of this draft for weeks on end asking the bestower of speech to let the appropriate words flow so…